Instruments for assessing the quality of life in Parkinson’s disease
DOI:
https://doi.org/10.34024/rnc.2010.v18.8437Keywords:
Parkinson’s disease, Quality of life, Physical TherapyAbstract
Introduction. Parkinson’s disease (PD) is a progressive and degenerative disease of the central nervous system that causes movement disorders and reduces the life expectancy of patients, reducing their quality of life (QL). Objective. The aim of this study is to review aspects of QL in patients with PD through the use of assessment instruments. Method. The methodology was based on a national and international bibliography, from 1961 to 2008, generic and specific instruments on the assessment of QL in PD. Results. Were selected of 46 articles. 19 articles being cited national, 25 international papers and 02 theses to obtain a master’s degree. Conclusion. We conclude that although the great majority of the scales were not developed for specific application in PD patients, they are widely known, reliable, valid and may be useful to the physiotherapist, due to the scarcity of specific instruments in the area and their need to guide the physiotherapy treatment.
Metrics
References
Camargos ACR, Cópio FCQ, Sousa TRR, Goulart F. O Impacto da doença de Parkinson na Qualidade de Vida: uma revisão de literatura. Rev Bras Fisio 2004;3:267-71.
Ferreira FV, Prado ALC, Cielo CA, Busanello ARA. Relação da postura corporal com a prosódia na Doença de Parkinson: Estudo de caso. Rev CEFAC 2007;9:319-29.
Le Dorze G, Dionne L, Ryalls J, Julien M, Ouellet L. The effects of speech and language therapy for a case of dysarthria associated with Parkinson’s disease. Eur J Disord Commun 1992;27:313-24.
Schulz GM, Grant MK. Effects of speech therapy and pharmacologic and surgical treatments on voice and speech in Parkinson’s disease: a review of the literature. J Commun Disord 2000;33:59-88.
Lana RC, Álvares LMRS, Nasciutti-Prudente C, Goulart FRP, TeixeiraSalmela LF, Cardoso FE. Percepção da Qualidade de Vida de indivíduos com doença de Parkinson através do PDQ-39. Rev Bras Fisio 2007;11:397-402.
Pagani TCS, Pagani JCR. Instrumentos de avaliação de qualidade de vida relacionada à saúde. Rev Ciência 2005; 1:32-7.
Seidl EMF, Zannon CMLC. Qualidade de vida e saúde: aspectos conceituais e metodológicos. Cad Saúde Pública 2004;20:580-8.
Marinus J, Ramaker C, Van Hilten JJ, Stiggelbout AM. Health related quality of life in Parkinson’s disease: a systematic review of disease specific instruments. J Neurol Neurosur Psychiatry 2002;72:241-8.
Mcdowell I. Measuring health: a guide to rating scales and questionnaires. New York: Oxford University Press, 1987, 342p.
Keränen T. Economic Burden end quality of life impairment increase with severity of PD. Parkinsonism Relat Disord 2003;9:163-8.
Carol-Dartal FJ, Martinez-Martin P, Vargas AP. Independent validation of SCOPA-Psychosocial and metric properties of the PDQ-39 Brazilian version. Mov Disord 2007;22:91-8.
Souza RG, Borges V, Silva SMCA, Ferraz HB. Escala para qualidade de vida na doença de Parkinson - PDQ 39 (versão do Português falado no Brasil) como instrumento para avaliação de pacientes com e sem flutuação motora decorrente da levodopa. Arq Neuropsiquiatr 2007;65:787-91.
Bittencourt ZZLC. Qualidade de vida em transplantados renais: importância do enxerto funcionante. Rev Saúde Púb 2004;38:732-4.
Oliveira MR, Orsini M. Escalas de avaliação da qualidade de vida em pacientes brasileiros após acidente vascular encefálico. Rev Neurocienc 2008;16:75-8.
Sousa TC, Pagani CR. Instrumentos de Avaliação de Qualidade de Vida Relacionados à Saúde. Rev Cienc Biol Saúde 2006;1:32-7.
Fleck MPA. Aplicação da versão em português do instrumento de avaliação de qualidade de vida da Organização Mundial da Saúde (WHOQOL 100). Rev Saúde Púb 1999;33:198-205.
Teixeira-Salmela LF, Magalhães LC, Souza AC, Lima MC, Lima RCM, Goulart F. Adaptação do perfil de saúde de Nottingham: um instrumento simples de avaliação da qualidade de vida. Cad Saúde Púb 2004;20:905-14.
Fleck MPA, Louzada S, Xavier M, Chachamovich E, Vieira G, Santos L, et al. Aplicação da versão em português do instrumento abreviado de avaliação da qualidade de vida – “WHOQOL-BREF”. Rev Saúde Púb 2000;34:178-83.
Kranciukaite D, Rastenyte D. Measurement of quality of life in stroke patients. Med (Kaunas) 2006;42:709-16.
Ciconelli RM, Ferraz MB, Santos W, Meinão I, Quaresma MR. Tradução para a língua portuguesa e validação do questionário genérico de avaliação de qualidade de vida SF-36 (Brasil SF-36). Rev Bras Reumatol 1999;39:143-50.
Britto RR, Santos CFF, Bueno FF. Reabilitação pulmonar e qualidade de vida dos pacientes portadores de DPOC. Rev Fisi Univ 2002;9:9-16.
Hunt SM, Mckenna SP, Mcewen J, Backett EM, Williams J, Papp E. A quantitative approach to perceived health status: a validation study. J Epidemiol Comm Health 1980;34:281-6.
Monsó E, Fiz JM, Isquierdo J, Alonso J, Coll R, Rossell A. Quality of life in severe chronic obstrutive pulmonary disease: correlation with lung and muscle function. Respir Med 1998;92:221-7.
Hunt SM. Cross-cultural issues in the use of quality of life measures in randomized controlled trials. In: Staquet MJ, Hays RD, Fayers PM. Quality of life assesment in clinical trials methods and practice. New York: Oxford University Press 1998, p.51-67.
Haan R, Aaronson N, Limburg M, Hewer R, Crevel H. Measuring quality of life in stroke. Stroke 1993;24:320-7.
Teixeira-Salmela LF, Olney JO, Nadeau S, Brouwer B. Muscle strengthening and physical conditioning to reduce impairment and disability in chronic stroke survivors. Arch Phys Med Rehabil 1999; 80:1211-81.
Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health related quality of life measures: literature review and proposed guidelines. J of Clinical Epidemiol 1993;46:1417-32.
Anderson C, Laubsher S, Burns R. Validation of the short form 36 (SF-36) health survey questionaire among stroke patients. Stroke 1996;27:1812-61.
Hopman WM, Verner J. Quality of life during and after inpatient stroke rehabilitation. Stroke 2003;34:801-5.
Lai SM, Pereira S, Duncan PW, Bode R. Physical and social functioning after stroke: comparison of the Stroke Impact Scale and Short Form-36. Stroke 2003;34:488-93.
Suenkeler H, Nowak M, Misselwitz B, Kugler C, Schreiber W, Oertel WH. Timecourse of health-related quality of life as determined 3, 6 and 12 months after stroke: relationship to neurological deficit, disability and depression. J Neurol 2002;249:1160-7.
Aranha LL, Mimirón CJA, Sardón AM, Montes PJ, González SMC. Qualidade de vida relacionada à saúde em espanholas com osteoporose. Rev Saúde Púb 2006;40:298-303.
Husted JA, Gladman DD, Farewell VT. Validating the SF-36 health survey questionnaires in patients with psoriatic arthritis. J Rheumatol 1997; 24:511-7.
Alves AMB. Avaliação de instrumentos de medida usados em pacientes com fibromialgia (Tese). São Paulo: Universidade Federal de São Paulo, 2003, 64p.
Mannerkorpi K, Ahlmén M, Ekdahl C. Six-and 24-month follow-up of pool exercise therapy and education for patients with fibromyalgia. Scan J Rheumatol 2002;31:306-10.
Valim V. Estudo dos efeitos do condicionamento aeróbico e do alongamento na fibromialgia (Tese). São Paulo: Universidade Federal de São Paulo, 2001, p.117.
Vitorino DFM, Martins FLM, Souza AC, Galdino D, Prado GF. Utilização do SF-36 em ensaios clínicos envolvendo pacientes fibromiálgicos: determinação de critérios mínimos de melhora clínica. Rev Neurocienc 2004;12:147-51.
Rosa LN, Cunha MCB, Franco RC. Qualidade de vida em indivíduos portadores da síndrome pós-pólio. Arq Med ABC 2006;31:18-22.
Cesário CMM, Penasso P, Oliveira APR. Impacto da disfunção motora na qualidade de vida em pacientes com Acidente Vascular Encefálico. Rev Neurocienc 2006;14:6-9.
Pinto RAS. Avaliação das Atividades da Vida Diária dos Pacientes com Doença de Parkinson submetidos à Cirurgia Estereotáxica. Arq Neuropsiquiatr 2002;60:435-41.
Jenkinson C, Heffernan C, Doll H, Fitzpatrick R. The Parkinson´s Disease Questionnaire (PDQ-39): evidence for a method of imputing missing data. Age and Ageing 2006; 497-502.
Goulart FRP, Pereira LX. Uso de escalas para avaliação da doença de Parkinson em fisioterapia. Rev Bras Fisio Pesq 2005;2:49-56.
Coelho MS, Patrizzi LJ, Oliveira APR. Impacto das alterações motoras nas atividades de vida diária na doença de Parkinson. Rev Neurocienc 2006; 14:178-81.
Hely MA, Chey T, Wilson A, Williamson PM, O´Sullivan DJ, Rail D. Reliability of the Columbia scale for assessing signs of Parkinson’s disease. Mov Disord 1993;8:466-72.
Canter GJ, De La Torre R, Mier M. A method for evaluating disability in patients with Parkinson’s disease. J Nerv Ment Dis 1961;133:143-7.
Nieuwboer A, Weerdt W, Dom R, Bogaerts K, Nuyens G. Development of an activity scale for individuals with advanced Parkinson’s disease: reliability and “on-off” variability. Phys Ther 2000;80:1087-96.
Schenkman M, Zhub CW, Cutsonbc TM, Whetten-Goldstein K. Longitudinal evaluation of economic and physical impact of Parkinson’s disease. Parkinson Related Disord 2001;8:41-50.
