Functional performance of children with Down syndrome and the quality of life of their caregivers
DOI:
https://doi.org/10.34024/rnc.2007.v15.8676Keywords:
Motor Skills Disorders, Down Syndrome, Quality of LifeAbstract
Introduction. In Down syndrome (DS) the learning process becomes more complex requiring the social/familial support. Caregivers can face problems due to taking care and, consequently, interfere in the quality of their child and their own. Objective. This is a cross sectional study aiming to evaluate functional performance of children with DS and their caregivers’ quality of life. Method. 20 children with DS and their caregivers were selected and, for comparison, 20 children with normal development; chronological age from 2 to 8 years, divided into 2 age sub-groups (2 to 4 and 5 to 8 years), belonging to the Ding Down — Funfarme/Famerp group. The instruments used were semi-structured interview, Pediatric Evaluation of Disability Inventory, and Caregiver Burden Scale. Results. Children with DS of both age groups presented performance significantly lower in the three areas of functional abilities: self-care, mobility, and social role compared to children with normal development. However, in the age group from 5 to 8 years significant
differences were not observed for mobility ability. For caregivers, it was evidenced that the variables isolation and emotional involvement presented the lowest scores. Conclusion. These children’s functional performance is reduced and the emotional aspects in this group of caregivers were impaired, some interventions being necessary.
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