Medidas de Avaliação na Esclerose Lateral Amiotrófica

Autores

  • Marco Orsini Professor Adjunto de Neurologia Clínica, Centro Universitário Serra dos Órgãos, UNIFESO, Teresópolis e Doutorando em Neurociências na UFF.
  • Marcos RG de Freitas Professor Titular de Neurologia e Chefe do Serviço de Neurologia da UFF.
  • Mariana P Mello Estagiários do Serviço de Reabilitação Neurológica da UNIFESO, Teresópolis.
  • Jhon P Botelho Estagiários do Serviço de Reabilitação Neurológica da UNIFESO, Teresópolis.
  • Fernando de Mendonça Cardoso Residente do Serviço de Neurologia da UFF.
  • Osvaldo JM Nascimento Professor Titular de Neurologia da UFF
  • Gabriel R de Freitas Neurologista do Serviço de Doenças Cérebro-Vasculares da UFF

DOI:

https://doi.org/10.34024/rnc.2008.v16.8652

Palavras-chave:

Esclerose Amiotrófica Lateral, Escalas, Avaliação

Resumo

A esclerose lateral amiotrófica é uma doença progressiva e degenerativa marcada pelo comprometimento dos neurônios motores superiores e inferiores. A depleção dos motoneurônios compromete diretamente as funções motoras, com conseqüente dificuldade/incapacidade dos pacientes na realização de atividades básicas e instrumentais da vida diária. Muitas avaliações têm sido propostas no sentido de acompanhá-los durante o percurso de suas vidas, entretanto, recomendações para a utilização de determinados instrumentos são pouco abordadas na literatura vigente. A escolha de cada escala é dependente dos objetivos clínicos e das terapias utilizadas. Para tal, os profissionais que lidam com essa clientela precisam estar orientados no que diz respeito à utilidade, interpretação e manejo das escalas.

Métricas

Carregando Métricas ...

Downloads

Não há dados estatísticos.

Referências

Granger CV, Hamilton BB, Linacre JM, Heinemann AW, Wright BD. Performance profiles of the functional independence measure. Am J Phys Med Rehabil 1993;72:84-9.

Williams BC, Fries BE, Warren RL. Predicting patient scores between the functional independence measure and minimum data set: development and performance of a FIM-MDS “Crosswlak”. Arch Phys Med Rehabil 1997;78: 48-54.

Guccione AA. Physical therapy diagnosis and the relationship between impairments and function. Phys Ther 1991;71:499-504.

Haley SM, Coster WJ, Blinda-Sundberg K. Measuring physical disablement: the contextual challenge. Phys Ther 1994;74:443-51.

Harvey RF, Jellinek HM. Functional performance assessment: a program approach. Arch Phys Med Rehabil 1981; 62:456-60.

Organização Mundial da Saúde. Classificação internacional de funcionalidade, incapacidade e saúde. São Paulo: Edusp, 2003, 325p.

Sampaio RF, Mancini MC, Fonseca ST. Produção científica e atuação profissional: aspectos que limitam essa integração na fisioterapia e na terapia ocupacional. Rev Bras Fisioter 2002;6:113-8.

Gomes MM. Envelhecimento e o aumento das doenças amiotróficas: epidemiologia das doenças (crônicas) das células do corno anterior da medula. Arq Bras Med 1991;65:589-94.

Cudkowicz M, Qureshi M, Shefner J. Measures and markers in amyotrophic lateral sclerosis. NeuroRx 2004;1(2): 273-83.

Bensimon G, Lacomblez L, Meininger V. ALS Riluzole Study Group. A controlled trial of riluzole in amyotrophic lateral sclerosis. N Engl J Med 1994;330(9):585-91.

Van den Berg JP, Kalmijn S, Lindeman E, Veldink JH, de Visser M, Van der Graaff MM, et al. Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology 2005;65(8):1264-7.

Rosenfeld J, Jackson CE. Quantitative assessment and outcome measures in neuromuscular disease. In: Katirji B, Kaminski HJ, Preston DC, Ruff RL, Shapiro BE. (eds.) Neuromuscular Disorders in Clinical Practice. Boston: Butterworth Heinemann, 2002, 1416p.

Couratier P, Torny F, Lacoste M. Échelles fonctionnelles de la sclérose latérale amyotrophique. (Journées neuromusculaires). Rev Neurol (Paris) 2006;162(4):502-7.

Stambler N, Charatan M, Cedarbaum J. Prognostic indicators of survival in ALS. Neurology 1998;50:66-72.

Jekel JF, Katz DL, Elmore JG. Epidemiologia, Bioestatística e Medicina Preventiva. 2ª ed. Porto Alegre: Artmed, 2004, 432p.

Jacques SMC. Bioestatística: Princípios e Aplicações. Porto Alegre: Artmed, 2003, 256p.

LaRocca NG. Statistical and Methodologic Considerations in Scale Construction. In: Munsat TL (ed.). Quantification of Neurologic Deficit. Stoneham: Butterworth, 1989, 49-67.

Herndon R. Introduction to clinical neurological scales. In: Herndon RM (ed.). Handbook of Neurologic Rating Scales. New York: Demos Vermande, 1997, 1-6.

Keith RA, Granger CV, Hamilton BB, Sherwin FS. The functional independence measure: a new tool for rehabilitation. Adv Clin Rehabil 1987;1:6-18.

Mahoney FI, Barthel DW. Functional evaluation: Barthel index. Md State Med J 1965;14:61-5.

Sadoul P. Assessment of functional respiratory deficit. Bull Eur Physiopathol Respir 1983;19:3-6.

Borg G. Psychological scaling with applications in physical work and the perception of exertion. Scand J Work Environ Health 1990;16(Suppl 1):55-8.

Johns MW. A new method for measuring daytime sleepiness: the Epworth sleepiness scale. Sleep 1991;14:540-5.

Guiloff RJ, Eckland DJA. Observations on he clinical assessment of patients with motor neuron diseases. Neurol Clin 1987;5:171-92.

Campbell WW. DeJong´s The neurologic examination: incorporating the fundamentals of neuroannatomy and neurophysiology. 6th ed. Philadelphia: Lippincott Williams & Wilkins, 2005, 641p.

Medical Research Council. Aids to the investigation of peripheral nerve injuries. War Memorandum (revised 2nd edition). London: HMSO, 1943, 11-46.

Brooks BR, Sufit RL, DePaul R, Tan YD, Sanjak M, Robbins J. Design of clinical therapeutic trials in amyotrophic lateral sclerosis. Adv Neurol 1991;56:521-46.

Wrigth W. Muscle training in the treatment of infantile paralysis. Boston Med Surg J 1912;167:567.

Mendell J, Florence J. Manual muscle testing. Muscle Nerve 1990;13:16-20.

Andres PL, Skerry LM, Munsat TL. Measurement of Strength in Neuromuscular Disease. In: Munsat TL (ed.). Quantification of Neurologic Deficit. Stoneham: Butterworth, 1989, 87-100.

Lilienfeld AM, Jacobs M, Willis M. A study of reproducibility of muscle testing and certain other aspects of muscle scoring. Phys Ther Rev 1954;34:279.

Beck M, Giess R, Wurffel W, Magnus T, Ochs G, Toyka KV. Comparing composite scores based on maximal voluntary isometric contraction and Drach-man´s hand-held dynamometry in evaluating patients with amyotrophic lateral sclerosis. Muscle Nerve 1999;22:1265-70.

Cedarbaum JM, Stambler N, Malta E, Fuller C, Hilt D, Thurmond B, et al. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III). J Neurol Sci 1999;169(1-2):13-21.

Cedarbaum JM, Stambler N. Performance of the Amyotrophic Lateral Sclerosis Functional Rating Scale (ALSFRS) in multicenter clinical trials. J Neurol Sci 1997;152(Suppl 1):S1-S9.

Miano B, Stoddard GJ, Davis S, Bromberg MB. Inter-evaluator reliability of the ALS functional rating scale. Amyotroph Lateral Scler Other Motor Neuron Disord 2004;5(4):235-9.

Ohashi Y, Tashiro K, Itoyama Y, Nakano I, Sobue G, Nakamura S, et al. Study of functional rating scale for amyotrophic lateral sclerosis: revised ALSFRS (ALSFRS-R) Japanese version. No To Shinkei 2001;53(4):346-55.

Stambler N. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with amyotrophic lateral sclerosis. The ALS CNTF treatment study (ACTS) phase I-II Study Group. Arch Neurol 1996;53(2):141-7.

McGuire D, Garrison L, Armon C, Barohn R, Bryan W, Miller R, et al. Relationship of the Tufts Quantitative Neuromuscular Exam (TQNE) and the Sicknes Impact Profile (SIP) in measuring progression of ALS. SSNJVCNTF ALS Study Group. Neurology 1996;46(5):1442-4.

Hillel AD, Miller RM, Yorkston K, McDonald E, Norris FH, Konikow N. Amyotrophic lateral sclerosis severity scale. In: FC Rose (ed.). Amyotrophic Lateral Sclerosis. New York: Demos, 1990, 93-7.

Brinckmann JR, Andres P, Mendonza M, Sanjak M. Guidelines for the use and performance of quantitaive outcome measure in ALS clinical trials. J Neurol Sci 1997;147:97-111.

Appel V, Stewart SS, Smith G Appel SH. A rating scale for amyotrophic lateral sclerosis: description and preliminary study experience. Ann Neurol 1987;22:328-33.

Norris FH Jr, KS U, Sachais B, Carey M. Trial of baclofen in amyotrophic lateral sclerosis. Arch Neurol 1979;36:715-6.

Lacomblez L, Bensimon G, Leigh PN, Guillet P, Meininger V. Dose-ranging study of riluzole in amyotrophic lateral sclerosis. Lancet 1996;347:1425-31.

Olarte MR, Shaffer SQ. Levamisole is ineffective in the treatment of amyotrophic lateral sclerosis. Neurology 1985;35:1063-6.

Brooks BR. The Norris ALS escore: Inside into de nature history of Amyotrophic Lateral Sclerosis, provided by Forbes Norris. In: Rose FC (ed.). Amyotrophic Lateral Sclerosis, III: ALS – From Charcot to the present and into the future. London: Smith, 1994, 21-9.

Brooks, BR. Amyotrophic lateral sclerosis clinimetric scales: guidelines for administration and scoring. In: Herndon RM (ed.). Handbook of Clinical Neurological Scales. New York: Demos Vermande, 1997, 27-9.

Brooks BR, Shodis KA, Lewis DH, Rawling JD, Sanjak M, Belden DS, et al. Natural history of amyotrophic lateral sclerosis. Quantification of symptoms, signs, strength, and function. Adv Neurol 1995;68:163-84.

Mitsumoto H. Treatment trials in Amyotrophic Lateral Sclerosis. In: Mitsumoto H, Chad DA, Pioro EP (eds). Amyotrophic Lateral Sclerosis. Philadelphia: Davis Company, 1998, 329-59.

Riviére M, Meininger V, Zeisser P, Munsat T. An analysis of extended survival in patients with amyotrophic lateral sclerosis treated with riluzole. Arch Neurol 1998;55:526-8.

Desnuelle C, Dib M, Garrel C, Favier, A. A double-blind, placebocontrolled randomized study of an alfa-tocopherol in the treatment of amyotrophic lateral sclerosis. ALS 2001;2:9-18.

Downloads

Publicado

2008-06-30

Como Citar

Orsini, M., Freitas, M. R. de, Mello, M. P., Botelho, J. P., Cardoso, F. de M., Nascimento, O. J., & Freitas, G. R. de. (2008). Medidas de Avaliação na Esclerose Lateral Amiotrófica. Revista Neurociências, 16(2), 144–151. https://doi.org/10.34024/rnc.2008.v16.8652

Edição

Seção

Revisão de Literatura

Artigos Semelhantes

1 2 3 4 5 6 7 8 9 10 > >> 

Você também pode iniciar uma pesquisa avançada por similaridade para este artigo.

Artigos mais lidos pelo mesmo(s) autor(es)

1 2 3 4 5 > >>