Quality of life: a comparative analysis between children with Duchenne muscular dystrophy and their caregivers

Authors

  • Melissa Gonçalves Fisioterapeuta, Especialista em Intervenção Fisioterapêutica em Doenças Neuromusculares, Universidade Federal de São Paulo - UNIFESP.
  • Viviana Dylewski Fisioterapeuta, Especialista em Intervenção Fisioterapêutica em Doenças Neuromusculares, Universidade Federal de São Paulo - UNIFESP.
  • Anna Carolina Xavier e Chaves Fisioterapeuta, Especialista em Hidroterapia em Doenças Neuromusculares pela UNIFESP.
  • Tatiana Mesquita Silva Fisioterapeuta, Especialista em Hidroterapia em Doenças Neuromusculares pela UNIFESP.
  • Francis Meire Fávero Fisioterapeuta, Mestre em Ciências pela UNIFESP.
  • Sissy Veloso Fontes Fisioterapeuta, Professora de Educação Física, Doutora em Ciências pela UNIFESP.
  • Maria Fernanda CR Campos Médica Neurologista Infantil, Coordenadora do Ambulatório de Neuropediatria do Setor Neuromuscular da UNIFESP.
  • Acary Souza Bulle Oliveira Neurologista, Professor Filiado da Disciplina de Neurologia do Departamento de Neurologia e Neurocirurgia da UNIFESP.

DOI:

https://doi.org/10.34024/rnc.2008.v16.8615

Keywords:

Muscular Dystrophy Duchenne, Quality of Life, Caregivers

Abstract

Objective. The aim of the present study was to compare the quality of life of Duchenne muscular dystrophy patients by and by their caretakers, using the AUQEI scale (Autoquestionnaire Qualité de Vie Enfant Imagé). Method. This study included 18 patients with Duchenne muscular distrophy, aged 6-12 years, and their 18 caretakers. The children completed the questionnaire and subsequently, their mothers. The Fisher Exact Test was used for the categorical variables and the Student t Test was used for numerical variables. Results. There was no statistically difference between the scores of mothers and children (p=0.43). The mothers evaluate the quality of life of their children as good, the same as do their children. Conclusion. Mothers and children share the same view concerning the quality of life of the children and it was good.

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Published

2008-12-31

Issue

Vol. 16 No. 4 (2008)

Section

Artigos Originais

How to Cite

1.
Gonçalves M, Dylewski V, Chaves ACX e, Silva TM, Fávero FM, Fontes SV, et al. Quality of life: a comparative analysis between children with Duchenne muscular dystrophy and their caregivers. Rev Neurocienc [Internet]. 2008 Dec. 31 [cited 2025 Dec. 13];16(4):275-9. Available from: https://periodicos.unifesp.br/index.php/neurociencias/article/view/8615