Functional skills of children with Congenital Zika Virus Syndrome and overload of mother
DOI:
https://doi.org/10.34024/rnc.2021.v29.11749Keywords:
Zika virus, Microcephaly, Motor dexterity, Exhaustion of the caregiver, WorkloadAbstract
Introduction. Congenital Zika Virus Syndrome (SCZV) causes a series of brain changes that tend to severely impact the neuropsychomotor development of these children. Objective. To analyze the relationship between functional abilities of children with SCZV and their mothers' burden. Method. Cross-sectional analytical study, carried out in a rehabilitation center in Goiânia, Goiás, Brazil. A semi-structured questionnaire was applied with sociodemographic data of the mothers and the child's clinicians; Informal Caregiver Burden Assessment Questionnaire (QASCI); Pediatric Evaluation of Disability Inventory - Computer Adaptive Test (PEDI-CAT). Results. Sample consisting of 32 children with SCZV and their mothers. All mothers had moderate to high burden. All children had a delay in functional skills. Moderate correlations were established between the PEDI-CAT domains and the QASCI domains (reaction to demands, mechanisms of effectiveness and control and satisfaction with the role and the family member), as well as with their final score. Conclusion. The functional abilities of these children are severely impacted. The worse the children's functional abilities, the less the overload in response to demands and mechanisms of effectiveness and control and the greater overload in satisfaction with the role and the family member.
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Copyright (c) 2021 Marinna Coelho Oliveira, Gabriela Eiras Ortoni, Thereza Cristina Rodrigues Abdalla Veríssimo, Maysa Ferreira Martins Ribeiro, Andréa Souza Rocha, Francine Aguilera Rodrigues da Silva, Mônica Isabella Chagas Moreira, Mayara Cordeiro de Faria, Cejane Oliveira Martins Prudente, Paulo Fernando Lôbo Corrêa
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Accepted 2021-04-28
Published 2021-07-22
